WE ARE NOTRECOVEREDUK
‘The UK branch of an international organisation (Not Recovered) committed to ending the suffering of millions of people affected by Long Covid, ME/CFS and associated conditions such as POTS, MCAS, and rare vaccine injuries.
WE ARE IN THE MIDDLE OF THE GREATEST MASS-DISABLING EVENT IN HUMAN HISTORY!
There are currently 1.9 million people in the UK reporting Long Covid according to ONS figures , 381,000 of whom are seriously debilitated (~19%).
The UK economy is substantially impacted with a £5.7B loss in productivity
2.8 million people in the UK are out of work on long term sickness.
At least 65 million globally have Long Covid
Prior to the Covid-19 pandemic, 250,000 people in the UK have ME/CFS
Long Covid can have a lower quality of life than late-stage cancers
ME/CFS can have a significantly lower quality of life than lung cancer and renal failure .
There are currently no effective treatments for Long Covid .
NICE: “There is no known treatment specifically for long COVID.”
There are no treatments approved for ME/CFS.
CDC states: "There is no cure or approved treatment for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)".
Despite the increasing need for research and treatments, the government has thus far spent £50 mn on LC research, which translates to £26 per patient over a three year period, or £6.58 per patient per year. Almost none of this has gone into biomedical research that will understand and treat the disease.
ME/CFS receives approximately 0.02% of all active awards given by these mainstream agencies.
All-Party Parliamentary Group on coronavirus called for £100mn a year in funding a year,, which would translate to £52.63 per patient per year .
Long Covid is costing UK workers a total of £1.5bn a year in lost earnings, and there are 110,000 workers missing because of Long Covid.
Long Covid is also costing the NHS up to £60M a year in GP appointments.
"In the UK, more than 250,000 people have Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), a devastating illness that is estimated to cost the British economy £3.3 billion per year"
This has to change, help us take action! Follow us on social media, share our campaign and help us continue to fund billboards as we fight for government recognition and action to invest in biomedical research to get our lives back!
WHAT WE FIGHT FOR
RESEARCH
A global investment in biomedical research to improve the treatment, diagnostic and understanding of infection-onset diseases in a timely manner.
CARE
The establishment of medical care structures to improve the care and support for people suffering.
RECOGNITION
The recognition as a serious condition and disability by society, government and institutions.